5 years. It feels like both an incredibly long time and sometimes like little time at all has passed since my transplant. There are days where I’m so far from it now, it seems like a long-lost memory of something horrible somewhere way off in the distance; then there are…
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Day 1095- 3 Year ‘Re-Birthday’- Messages from the Universe
Today is my third ‘Re-Birthday’. Three years ago today, a kind and incredibly selfless person gave part of themselves to me, so I could win my battle with cancer and have a chance at a second life. To many of you I’m sure, three years seems like a long time,…
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Day +636
I have been home from rehab for just over two months and I’m generally doing ‘well’ and am happy with the slow but steady progress I am making. I recently had several neurological tests done to determine the cause and severity of the ‘neuropathy’ that I was experiencing in my…
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Day +592
It’s been a while since I wrote a blog, but a lot of stuff has happened and I’ve truly been in the hardest, darkest stretch of recovery. I just couldn’t do it. This is a long one, but it’s been a long three months and my hands wouldn’t agree with me…
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Day +498- One in a million
In my last blog I talked a lot about this recurrent Cytomegalovirus (CMV) infection that I’ve been having endless problems with. At the end of July I was hospitalized to manage the complications that the drug Foscarnet, which we were using to treat the CMV had been causing. It’s very…
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Day +467
I’ve talked a lot about the light at the end of the tunnel; how far away it seems sometimes. Like a finish line just out of reach, or a constantly moving target, the end never seems to truly be in sight. This time it feels the light turned out to…
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Day +420
It’s been almost six months since I wrote an update last and I figured it was finally time. Like many months before this, I’ve let week after week go by waiting for some kind of huge breakthrough to happen. To get close enough to the edge of this land of limbo…
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Day 243
Man a lot can happen in a year. This time last year I was preparing for a transplant. Filling out forms, trying to find a donor and wondering if I would make it to another Christmas. Now here I am, cancer free, feeling extraordinarily lucky and grateful to be on…
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Day 183- Halfway Point
It’s officially been six months since I had my Bone marrow transplant and time feels like it has somehow simultaneously flown by at warp speed, and stretched on endlessly. This is the halfway point to my next post-transplant milestone, which is to make it to the one year mark. After…
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Day +145
I sit down in the cheap wire chair which is about as uncomfortable as I currently feel inside. I wish I was anywhere other than here right now; that I could have just navigated all these complications on my own. I wish everything just felt easier. Most especially I wish…